We have been so blessed by so many of you to bring/send/gift us such yummy meals through our meal train! THANK YOU! We appreciate this tremendously and it has taken a huge burden off our shoulders with having to plan meals or prepare meals while dealing with the after effects of chemo and two little ones who constantly need us. Many of you have been asking how you can help….signing up on the meal train ranks right at the top of the list 🙂 I am putting the link at the bottom of the blog post again.
Last week I finally got my official staging: Stage 2b invasive ductal carcinoma. SOOO many answered prayers that it is considered stage 2 and not stage 3. Hearing this gave me more hope and the light at the end of this very long tunnel got a little brighter!
And then that brightness was slightly dampened by the debilitating side effects of chemo. I know my side effects are not nearly as bad as what many people experience, however they were pretty crippling for a few days. Most of the other breasties, doctors and nurses I have spoken with have said the side effects come 7-14 days but I definitely experienced them sooner than that.
Days 1 to 4 after my infusion I experienced mild symptoms: hot flashes with flushed face, headaches, nausea, body aches, fatigue. Nausea and fatigue are the main side effects most common with chemo and these side effects were pretty mild for the first few days. The hot flashes and flushed face were most likely from coming off the steroids I take before and after the treatment. The body aches came from the Neulasta injection, which I would take Claritin for to help control those. Oh! And nosebleeds…those boogers are annoying and unpredictable!
Days 5-7 is when $&*@ got real…I am going to go off the assumption the side effects intensified because chemo IS working (and killing this ish) and the steroids were leaving my system. My nausea got worse and turned into vomiting for a full day. It was hard to get the vomiting under control but eventually did and started alternating my anti-nausea medications. The nausea was so bad I started having back spasms simultaneously, which I guess can be considered a new talent. HUGE thank you to Pam Ross for coming to my rescue and guiding me with alternating medications to get my nausea and vomiting under control. As a result of the constant vomiting and nausea, fatigue set in big time. In addition to all of this, I started to experience some….uhh…GI issues. I will spare you the details but I did warn everyone that I am going to be open, honest and not hide anything.
Day 8: I started to feel better. Better meaning still with nausea but was able to still function at least. Which is super important with a terddler, oh sorry I mean toddler, that is very vocal with her needs and what she wants you to do. That evening my….uhhh…GI issues ramped up with the most annoying side effect…diarrhea. Again, I’ll spare most details, but let’s just say it’s not fun.
On day 9 I called my doctors office and they suggested I come in for fluids, anti-nausea, and steroids. I mean my body had pretty much expell(iarmus)ed all my nutrition and liquids over the past few days. I hope you picked up on that Harry Potter reference again 🙂 The fluids they gave me had super human powers or were a power juices cause I felt like Wonder Woman after that! And I have been feeling better ever since. We are working with my doctor on developing a schedule to come in for extra fluids between cycles. These fluids may just be named my ‘super human’ potion.
The breasties I have been talking with throughout this journey say that you can get a feeling for how and when the side effects will have the most impact on you. Based off of this first cycle, I am thinking the first week and a half after the infusion will be the worst for me. However, I am thankful for friends who helped me figure out medication regiments and the nurses who gave my my super human potion to feel more like myself.
On Monday 01/10 I met with the breast surgeon. We reviewed the MRI and confirmed that there were no new findings. Again, praise God! We discussed my surgeries, which will occur about 4 wks after chemo. They will then give me about 4-6wks to recover from surgery before starting radiation. Next up is scheduling my appointments with the radiation therapy doctors and to meet with the lymphadema clinic. My radiation is scheduled to start this summer and the appointment with the lymphadema clinic is precautionary in the event I develop lymphadema in the lymph nodes during radiation. Alot of moving parts….and alot of waiting still.
Here is the schedule of my next 6 ‘heavy’ chemo infusions, pending nothing changes: Thursday Jan 20th, Thursday Feb 10th, Thursday March 3rd, Thursday March 24th, & Thurs April 14th.
To my Richmond area friends: please send me recommendations for a plastic surgeon!!! The only requirement is they have surgery rights at HCA….and that they can make the new tatas look good 🙂 (that is Blake’s request)
Prayers for this next week: that our children sleep (please!), the side effects do not return before the next infusion, and I continue to have energy.
Thank you again for all your support, love, and prayers. We are constantly in awe of how gracious, selfless, and kind everyone continues to be. #alysasarmy #pearlsandpinkingofyou #tatafornow #byebyeboobies
Love,
Alysa & Blake
“And we know that in all things God works for the good of those who love him, who have been called according to his purpose.” Romans 8:28
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